Peditaric feeding disorders: caregiver perspectives on child healthcare in the Latino population

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Description
Latino parents of children with feeding disorders completed a survey about their experiences accessing support and the cultural competence of their providers. This work is a follow-up project to a presented American Speech and Hearing Association Conference poster (Stats-Caldwell, Lindsay,

Latino parents of children with feeding disorders completed a survey about their experiences accessing support and the cultural competence of their providers. This work is a follow-up project to a presented American Speech and Hearing Association Conference poster (Stats-Caldwell, Lindsay, Van Vuren, 2017). That project revealed caregivers’ use of social media and indicated an overall perceived lack of support from providers. In the present survey, Latino caregivers identified the resources they consult and rated the level of helpfulness in addition to the types of supports they sought and received from these resources. Results indicate a considerable reliance on pediatricians in both frequency of consultation and helpfulness ratings. No significant difference was seen between the frequency of consultation between pediatricians, speech-language pathologists and other service providers. No significant difference was found in the helpfulness ratings between speech-language pathologists and topic-specific social media pages, nor speech-language pathologists and grandmothers. Participants indicated reliance on social media for informational resources. The influence of social media is discussed. The cultural implications of treating this population are also reviewed.
Date Created
2018
Agent

The Adult Communication, Cognitive, and Reading Profile of 22q11.2 Deletion Syndrome

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Description
22q11.2 Deletion Syndrome (22q11.2DS) is one of the most frequent chromosomal microdeletion syndromes in humans. This case study focuses on the language and reading profile of a female adult with 22q11.2 Deletion Syndrome who was undiagnosed until the age of

22q11.2 Deletion Syndrome (22q11.2DS) is one of the most frequent chromosomal microdeletion syndromes in humans. This case study focuses on the language and reading profile of a female adult with 22q11.2 Deletion Syndrome who was undiagnosed until the age of 27 years old. To comprehensively describe the participant's profile, a series of assessment measures was administered in the speech, language, cognition, reading, and motor domains. Understanding how 22q11.2DS has impacted the life of a recently diagnosed adult will provide insight into how to best facilitate long-term language and educational support for this population and inform future research.
Date Created
2018-05
Agent

Ultrasound Imaging of Swallowing Subsequent to Feeding and Myofunctional Intervention

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Description
The purpose of this study was to examine swallowing patterns using ultrasound technology subsequent to the implementation of two therapeutic interventions. Baseline swallow patterns were compared to swallows after implementation of therapeutic interventions common in both feeding therapy (FT) and

The purpose of this study was to examine swallowing patterns using ultrasound technology subsequent to the implementation of two therapeutic interventions. Baseline swallow patterns were compared to swallows after implementation of therapeutic interventions common in both feeding therapy (FT) and orofacial myofunctional therapy (OMT). The interventions consist of stimulation of the tongue by z-vibe and tongue pops. Changes in swallowing patterns are described, and similarities of interventions across the two professions are discussed. Ultrasound research in the realm of swallowing is sparse despite having potential clinical application in both professions. In using ultrasound, this study outlines a protocol for utilization of a hand-held probe and reinforces a particular protocol described in the literature. Real-time ultrasound recordings of swallows for 19 adult female subjects were made. Participants with orofacial myofunctional disorder are compared to a group with typical swallowing and differences in swallowing patterns are described. Three stages of the oral phase of the swallow were assigned based on ultrasonic observation of the tongue shape. Analysis involves total duration of the swallow, duration of the three stages in relation to the total duration of the swallow, and the number of swallows required for the bolus to be cleared from the oral cavity. No significant effects of either intervention were found. Swallowing patterns showed a general trend to become faster in total duration subsequent to each intervention. An unexpected finding showed significant changes in the relationship between the bolus preparation stage and the bolus transportation stage when comparing the group classified as having a single swallow and the group classified as having multiple swallows.
Date Created
2016-05
Agent

Influence of Activity Type and Setting on Toddler Language Environment

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Description
Early childhood language environment has an important effect on developmental language outcomes. Intervention and parent training for children who have speech and language delays often focuses on the implementation of strategies designed to enhance the language environment. With quantitative information

Early childhood language environment has an important effect on developmental language outcomes. Intervention and parent training for children who have speech and language delays often focuses on the implementation of strategies designed to enhance the language environment. With quantitative information on different aspects of the language environment, intervention and parent training can be better tailored to the needs of each child and can be made easier for parents to implement. This study uses the Language Environmental Analysis (LENA) system to explore differences in language environment across participants, settings (toddler group and home), and activities (general, outside, and organized playtime, story time, meal time, naptime, transition, public outside visits, travel time, TV time, personal care, and other). Participants were five children, ages 20-35 months who had speech and language delays. The children wore the LENA for one day and the adult words to the child, child vocalizations and turn-taking were analyzed during each activity and setting. We found that general and outside playtime activities, meal time, and personal care times were activities that consistently resulted in high levels of child vocalization across participants. Structured play and story time did not result in high levels of child vocalization. We also found that, for some children, there were differences in the quantity of adult language addressed to the child in language group and home settings. These findings have implications for training parents to provide language rich environments for their child.
Date Created
2015-05
Agent