Parent Survey of Exercise Preferences for Children with Down Syndrome

There has been very little research conducted on the long-term effects of exercise on children with Down Syndrome (DS), however, there is some research on Assisted Cycle Therapy (ACT) in adolescents and adults with Down Syndrome and has found positive results on motor, cognitive and mental health measure. Therefore, a grant proposal was submitted to develop ACT Early, a pediatric version of the ACT bicycle, developed in conjunction with Theracycle, geared towards early intervention in children with DS rather than adults with DS. Once submitted, the reviewers sent back their comments of why they would not fund the development of ACT Early. The comments focused on what the parents/guardians would want for their children. Therefore, the purpose of this thesis was to create a questionnaire for parents/guardians so a new grant proposal can be created based on their input and to find the effects exercise and ACT has on children with Down Syndrome. After weeks of helping create the survey based on comments from reviewers of the previously submitted grant, I collected 70 questionnaires at several events in the community. Our results showed that the exercise regimen would be most appropriate for 7-9 year old’s for 2 days a week and 30-45 min per day. The type of exercise would be light intensity on an ACT Theracycle, and it will be done in a fitness/clinical setting. Other options that were suggested were to add music or a buddy to exercise with. Additionally, straps will be used on the Theracycle to ensure maximum safety and the results will be disseminated via emails, websites, in person and through journals. In conclusion, the hope is that the changes made to the study based on this survey of parent/guardian input will help fund the development of the ACT Early Theracycle for children. This is important because early intervention in children with neurological disorders can achieve their best quality of life as soon as possible and become independent, happy, and productive in our society.